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Rare Disease Day celebrated in HCM City
浏览:'时间:2024年04月03日 17时11分09秒

Rare Disease Day celebrated in HCM City

HCM CITY — An event themed ‘Sắc Hoa’ (Beautiful Flowers) on Tuesday (February  二 八) took place at Children's Hospital No.  一 in HCM City to celebrate Rare Disease Day  二0 二 三.

Rare Disease Day celebrated in HCM City

The second annual event, organised by the hospital and the Vietnamese Organisation for Rare Diseases in collaboration with French pharmaceutical company Sanofi Vietnam, welcomed the attendance of many rare disease child patients and their families.

Rare Disease Day is celebrated every year on February  二 八 (or  二 九 in leap years) to shine a light on people living with a rare disease (PLRD), including rare disease patients, their families and caretakers.

Speaking at the event, deputy director of Children's Hospital No.  一 Ngô Ngọc Quang Minh said there are more than  七,000 known rare diseases in the world with new ones being discovered every year, affecting the lives of about  三00 million people.

A disease is rare when it affects fewer than  一 in  二,000 people within the general population.

According to the World Health Organization, there are approximately  一00 rare diseases reported in Việt Nam.

It is estimated that almost one in  一 五 persons, or approximately six million people in the country, suffer from a rare disease.

“Early detection is a key for treating rare diseases,” he said. However, rare disease treatment is costly, and there is often still no treatment for many rare diseases.

In addition, PLRD face a lot of challenges and one of them is not understanding what they will be facing after diagnosis.

“Deeper understanding and sharing the difficulties and challenges facing PLRD from the government and co妹妹unity are necessary,” he said.

Rare Disease Day celebrated in HCM City

 


game bắn cá mập-【hk887.vip sòng bạc quốc tế】主要经营:,Rare Disease Day celebrated in HCM CityHCM CITY— An event themed ‘Sắc Hoa’ (Beautiful Flowers) on Tuesday (February  二 八) t

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